Published On : Wed, Dec 3rd, 2025
By Nagpur Today Nagpur News

21-month-old Khushi battles rare genetic disorder; family appeals for support for Rs 9.5-cr treatment

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Mumbai: Twenty-one-month-old Khushi Yadav, a resident of Panvel, Navi Mumbai, is fighting for her life after being diagnosed with Spinal Muscular Atrophy (SMA) Type 2, a rare and progressive genetic disorder that weakens the muscles and affects mobility and respiratory function.

Khushi, daughter of Aarti Kumari Yadav and Samit Yadav, is currently under treatment by Dr Neelu Desai, Paediatric Neurologist at P.D. Hinduja National Hospital & Medical Research Centre, Mumbai.

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Doctors have recommended Zolgensma, a one-time gene therapy manufactured by Novartis (USA), considered one of the most effective treatments for SMA in young children. However, the cost of the therapy, Rs 9.5 crore, is far beyond the family’s means. Importantly, the treatment must be administered before Khushi turns two years old, leaving the family racing against time.

Appealing for public support, Khushi’s parents have requested donations from citizens, organisations, and philanthropists to save their child. Fundraising is being carried out through verified platforms, and the family has provided official links and UPI details.

“Even a small contribution or sharing the appeal can help save Khushi’s life,” the family said, urging compassionate support for their daughter’s treatment.

How to help

UPI: supportkhushi3@yesbank

Donate via ImpactGuru: impactguru.com/fundraiser/please-help-khushi-yadav

Khushi’s parents hope that collective goodwill can help them secure the life-saving therapy and give their daughter a chance at survival.

“Let us come together to save this little angel,” the appeal says.

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